Saturday, May 22, 2010

The influences of the EU on our medical care

Although I may have my objections to the participation of the EU in matters of the personal space of its citizens - I must say that the power of the EU to support medical studies to advance the level of care offered to its citizens is a thing I'm glad to be benefitting of:

You may (or may not yet) know that I am taking part in a EU study that has the intention of eliminating Radiation as part of the treatment for stage 1-2 Hodgekin's Lymphoma.
The current standard treatment worldwide consists of both ABVD Chemotherapy and radiation therapy.
For my stage — 2B - The standard course of treatments is of 4 sets of chemo and radiation.
The research is trying to show the possibility of curing without the use of the radiation, which has very bad influences on the body for the long term, and can increase the risks of other diseases or other types of cancer in the years to come (in other words — not the best thing to be getting into your body).
This is done by splitting the participants into 2 groups - Favorable (type A of the stage) and Unfavorable (type B of the stage - me included). Within each group, there is a randomization process into 2 sub-groups - those that get the standard treatment (chemo+radiation) and those that get the trial treatment.
All participants of the research have an additional PET Scan after the first 2 sets of chemo (4 actual treatments) to monitor the effectiveness of the chemo so far.
If the results of the PET are positive, which means the following (for my group of unfavorable patients):
Group 1 (Standard treatment):  no change in treatment whatever the results are.
Group 2 (Study group): 
Positive (existence of active cancer cells):  change of the treatment into BEACOPP Chemotherapy with radiation therapy.
Negative (no cancer activity): continue with additional 4 sets of ABVD Chemotherapy with no radiation - which is the purpose of the study.

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Now to my reality:

So far I've completed 2 sets of ABVD (4 treatments in total, every 2 weeks since 30 March).
Last chemo treatment was on 11 May.
within the research i've been blessed to be 'randomized' into group 2 (study) with the possibility of radiation free treatment)
On 20 May I had my PET scan.
My doctor didn't think it would be fair for me to go into the long weekend (holiday on monday) without knowing the results that may change the course of treatment for me and are so important for the future of my battle with cancer - arranged for us to have the meeting to go through the results on Friday, 21 May (to my readers in other places in the world, namely in Israel - It is possible to get the results of the PET scan within 24 hours. the results are available in the computer immediately. there is absolutely NO REASON in the world why it should  take 2 whole weeks of terrible waiting {those who have ever waited for such results would know what I mean} to get the results analyzed and reported to you — good or bad. be sure to insist on your right to know.)

And yes - 21 May was yesterday! So you might wonder what the results are?
ahhh -
stay tuned :-)



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